We are home!

Jasmine was discharged from the hospital on Monday 9/26. We were all so happy that we finally got to go home. 


























I bet Jasmine feels very happy about that too, as I finally see her smile again after we got home and laid her down on our bed. She even hold the zippy cup and drink from it by herself. 
Hopefully, she will feel better every day and eventually go back to her old eating habit. Right now, she would only take couple spoonful of baby food and still doesn't want to drink milk from the bottle. As a result，she is still eating through the feeding tube. 
Thank you for everyone's continuous support and prayers.

09/25/11 Jasmine's condition update

My husband and  I really miss bringing Jasmine to church for Sunday service. But we are optimistic that we could do it very soon! Since we can't go to church to worship our Lord, daddy decides to do it in the hospital. We read some bible verses, sing some praise songs, and pray together as a family. It is such a joyful and peaceful time. 
Jasmine is doing pretty well today except she still hasn't gain any weight back. She is so skinny now that I really hope she could feel more comfortable and start to eat more when we go home. 
The only episode that happened today is placing the feeding tube. I was supposed to learn how to do it but I got so emotional even before it has started. At last, I have to step out from the room and have my husband take over . Once again, daddy did an excellent job!

09/24/11 Jasmine's condition update

My weekend plan? Staying in hospital. My next weekend plan? Play and laugh with my little princess at our own home. 

The doctors are discussing again if they have to continue monitoring Jasmine in the hospital. If not, she probably can get discharge on Monday. 

Feeding pump training-checked
Practice on changing bloody dressing-checked
Putting the feeding tune into Jasmine-um.....TBD....probably tomorrow.....

Above are the three things that parents must learn before Jasmine can be discharged. 

Another episode today as Jasmine throws up again after feeding and she has a minor fever but fortunately it is gone after awhile. She is now in a pretty good mood and we really hope that she will keep up the good mood and tolerate all her feedings. So that we could get to go home next week.

09/23/11 Jasmine's condition update

Jasmine has her MRI done today. The result indicates that although the mass on her neck looks bigger, it is not dangerously close to the air way. Therefore, we shouldn't worry too much about her having breathing problem later on. However, her esophagus got pushed a bit due to that mass and the doctors think that it might be the reason why Jasmine is not willing to eat.
Anyway, Jasmine will have to keep the feeding tube with her before she is willing to eat on her own again. And the scariest thing is that I have to learn how to put in the feeding tube!!! 
Besides the MRI, the doctor also performed a throat scope on her. I have to step out of the room, as I really don't want to see another equipment being insert into my little's girl body forcefully. Of course Jasmine doesn't like that either, but the bright side is that the test result come out positive.

09/22/11 Jasmine's condition update

Another tough day..........

Jasmine continues with her tube feeding, but the poor girl throws up at one of the feeding sessions.  Then she feels so uncomfortable that she just cries non stop, which scares the heck out of me.  At last the nurse calms her down by injecting a stronger pain relief medicine. 

After all the drama, I almost have an emotion break down.  Fortunately, I have a lot of supportive friends who help me through it, and I'm still alive at this point.  During my short break from the hospital, my husband told me that Jasmine's temperature is a bit high.  That totally freaks me out again but her temperature is back to normal after 15 mins.  Due to cautious reasons, the doctor decides to run a blood test on Jasmine.  Poor Jasmine has to suffer four pokes before the nurse could get sufficient blood amount for testing. 

Since the mass on Jasmine's neck got larger after the surgery, the doctor has scheduled another MRI tomorrow.  I know everyone has been praying hard for Jasmine and our family......don't mind me saying this again and again....please continue to keep our family in prayer.  Thank you.

09/21/11 Jasmine's condition update

Jasmine has a swallow study today, and the result indicates that she is swallowing fine. However, we still couldn't figure out why she won't eat from a bottle and eat a lot less than usual. 
Jasmine's doctor requests us to feed her 5 times a day. We would try to feed her first (usually she would eat about 50ml of food with spoon...absolutely no bottle or zippy cup) then the rest will be fed by tube. So far she is doing ok....would throw up occasionally but she did gained 0.07 kg today! 
The doctor gave her antibiotics to control her minor infection on the wound. She has already use that for two days and she needs to take it for five more days in order to fully utilize the drugs. 

09/20/11 Jasmine's condition update

It has been a week since Jasmine's surgery and she is still in the hospital. Jasmine is still not quite willing to eat and the doctors have decided to put in a feeding tube today. It was not a pretty scene and I was asking myself "what have I done to my little girl?" " She was fine all along....did I rush on the surgery?" "what have I done to my little girl?"
Jasmine vomits out a bit of her food for her second tube feeding. I really hope that she would get use to the system as soon as possible and keep all the food in her tummy. 

09/19/11 Jasmine's condition update

Jasmine is still not willing to take the bottle, but at least willing to have two small meals that are fed with spoon.  Hopefully, her appetite will get better, then she will catch up with her nutrient intake and avoid the feeding tube.  Since Jasmine is still not eating very well, she still has an IV intact to her.  She is also taking antibiotics, because the doctors are afraid that her wound will get infected.

A nutritionist and an occupation therapist will come re-evaluate her tomorrow, and hopefully we will get a good result.

09/18/11 Jasmine's condition update

Jasmine is still unwilling to eat, so she still has an IV attached to her little body. All she has today is a small container of baby food.....well, positive side is that she at least eat once today, the negative side is that she is still eating a lot lesser than what she would normal eats.
Her weight loss is not very significant today but it still worries me. I just hope the doctors would be more aggressive and try to find a resolution. I really really want her to eat!
It seems like her pain level has increased, as she is pretty upset and cranky today. Is heartbreaking to see my little girl cries and I just wish that I could suffer for her. 
I just continue to pray and hope that God will listen to my prayer and heal my little girl.......God, please answer my prayer!

09/17/11 Jasmine's condition update

Jasmine has a better mood today, she would smile and play with us occasionally. Step by step, she is acting more like herself.  However, she is still unwilling to eat. She has lost some weight already and I'm really worry that she will continue to lose weight and won't get enough nutrients if she doesn't start to catch up with her eating.

Please keep Jasmine in your prayer and pray that she would eat again and get the nutrients that she needs for her recovery.

My little brave warrior!

09/16/11 Jasmine's condition update

Tough tough day today.
After smiling at me in the morning and being called the cutest baby in the hospital, Jasmine refuses to eat and vomits out whatever goes into her tummy.
Doctor has to put an IV into Jasmine now, so that she will get hydrated and hopefully have better control on the pain relief.

Please pray for Jasmine and hope that she will eat by herself again and keep everything in her tummy.

09/15/11 Jasmine's condition update

Breathing tube got removed this morning and she has been doing fine with breathing on her own. 
She was bleeding quite a bit around the wound, as she is not on sleepy drugs anymore and she is just super active!
Despite the bleeding, she is doing very well and the doctors decided to release her from ICU and now staying in a normal room. Hooray!

09/14/11 Jasmine's condition update

Jasmine is still sleeping with breathing tube intact in ICU. Everything is well, except for a bit of swelling around the air way. Doctors will keep monitoring her and hope to take out the breathing tube by tonight.

4:22pm. The tube needs to stay in because of the swelling. :(

My first surgery

So my doctors at Seattle Children's have finally decided that is about time for my first surgery.  This surgery involves removing the mass on my chest and back.  The doctors tell me that I will be quite tire and weak after the surgery, so I'm handing the keyboard over to mommy.  She will help me update the blog and keep you guys posted.

Praise the Lord! Surgery is a success. But for cautious reason, Jasmine will be staying in the ICU tonight. 

Please kindly continue to pray for the little warrior. Pray that she won't feel too much pain after she wakes up from the drugs. Pray that she would have a smooth recovery (no fluid leakage from the wound, no infection, normal blood sugar and oxygen level.)

Thank you all for the continuous care and concerns.