Monday, October 31, 2011

Happy Halloween


I'm feeling a lot better today, and mommy allows me to take over today's post.
Happy Halloween everybody, I'm all dressed up and ready for Trick or Treat.  Are you?

Thursday, October 27, 2011

Updates 10/27/11

Haven't update Jasmine's condition for a while, because there aren't too much progress and I'm physically and mentally exhausted. Jasmine's potassium and sodium level are stable now with the help of medication. She is still on few kind of antibiotics; in order to fight off any potential infection that she might has on her mass. There were days that Jasmine's blood count was low and almost needed a blood transfusion. Fortunately, she is able to create more red blood cells on her own these couple days (although is still not in the normal range). 
The doctors and us had a conference last Wed and here's their plan:
--continue to perform blood draw and monitor Jasmine's blood test result
--if everything looks good through the weekend, then the doctors will move to the next step: sclerotherapy


Sclerotherapy : using medications to reduce swelling and infection. Sclerosing Agents are injected into certain large cysts to reduce their size. This mean the cysts is not removed, but scars down on itself son that growth stops. 



If everything goes according to the plan and no complications occur, it means--two more weeks and we could go home!

Thursday, October 20, 2011

Jasmine's potassium level is stable

Jasmine's potassium level is finally stable with the help of medication. So why are we still in the hospital? 


1. There are still pending blood test results
2. Doctors still couldn't figure out the reasons behind all these (I doubt they will ever find out the reason.....and I surely hope this is not one of the requirement that is retracting us from leaving. Because if it is, we will be here forever)
3. Jasmine has been getting a lot of IV fluid, and it causes her mass on her chest grow bigger. Now the doctor is trying out a new medicine on her for three days, and hopefully it will help decrease the size of the mass.
4. If the medicine doesn't work, then they will perform a procedure on Jasmine. It involves poking several pin size holes on Jasmine's chest; in order to drain out fluid from the mass. (if we have to go to this step, it means we have to stay even longer!)

Saturday, October 15, 2011

Is a mystery

We are still in the hospital as Jasmine's potassium level and blood count are not stable. Besides, we still have to wait for the blood test results to come back and hopefully the doctors could figure out the reasons behind all these. 
Jasmine is always a mystery to the doctors:
Unknown cause for her lymphatic malfunction 
Unknown cause for her unwillingness to eat orally
Unknown cause for her high potassium level and all the other wacky numbers from her blood tests
God's plan is always a mystery to us:
Unknown cause for giving us a baby with special medical need
Unknown cause for letting Jasmine suffer from all the medical procedures
Unknown cause for giving us challenge after challenge 
The only "known" factor is LOVE
-endless support and love from:
Family
Brothers and sisters in Christ
Friends.....BFF......
Jasmine....even though she has to go through so much, she is a true trooper as she would smile back to us and even comfort us by touching our faces
God.....even though He let us go through so much, He still provide us strength, peacefulness from time to time....Without him, I don't think we will still be alive......

Tuesday, October 11, 2011

Jasmine is back in the hospital

10/7 Friday 
10am:  Follow up appointment  & blood test @ Seattle Children's
1pm:  Blood test result is back--Potassium level is at risky level, sodium level is low, blood count is low, white blood cell count is super high
2pm: Doctor is very worried about Jasmine's condition and transfer us to the ER 
6pm: Have blood transfusion, transfer to ICU

10/7-10: Blood test every six hours.  Various tests followed and still couldn't figure out the reason behind the poor blood test result.










Children from our church are so thoughtful, they have sent us a lot of drawings for encouragement.










10/10 afternoon: Transfer to regular room.  Blood test twice a day, but still no answer


10/11.........still no answer
Luckily, our little warrior is still trying her best to keep her spirit up

Saturday, October 1, 2011

Happy birthday, Mommy

 I'm so glad that I got to celebrate mommy's birthday in our own house.
Happy birthday!