Gave out my 1st info card!

Today is a busy day for me as I have quite a few doctor appointments to attend in Seattle Children's Hospital.  Daddy and grandma are so nice, they took a day off so that they could be by my side for the appointments.  It is pretty exhausting to see doctors, nutritionist, and specialists from 11:00am to 2:30p.m. but we made it!

Mommy hand out our 1st info card to the social worker in the hospital, so that she would know my updates through my blog.

We went to Boom Noodle for lunch afterward.  I always enjoy eating their ramen! So.....yummy!  Then, we went to the playground next door after lunch and I had so much fun playing with the slides.  There was a little girl who kept asking mommy questions about me, and mommy didn't mind answering them.  At last, mommy hand an info card to the little girl's daddy.

I think it is totally awesome that mommy got to hand out the info card to parents, so that they could help educate their children about this medical condition.  Mommy told me that she really appreciate people being up front and ask her questions about my condition.  Because it could provide mommy a chance to explain to people and get them understand a little bit more about me.  So hopefully they would realize that there's nothing wrong with me and I'm just a normal kid.  Mommy also told me that she rather have curious kids than people just stare at us. (which is quite hurtful sometime)

Info cards are finally here!

Really appreciate my brothers and sisters from church who made these wonderful info card for Jasmine!!!!

God bless you all XOXO

Good job, Jasmine!

Mommy took me to the park today and it was so much fun as I got to play with the slides, swing, and also chase the ducks!
There were a lot of kids when we got to the park, and there were quite a few kids kept surrounding me and asking mommy tons of questions.  I overheard their conversion:


Little girl: What's wrong with her (referring to me--Jasmine)
Mommy: (Try to not use any medical terms and explain my condition to her patiently)  She has a medical condition.  There's water got collected in her neck and arm.
Little girl: That's sad......does it hurt?
Mommy: Not at this moment.
Little girl: Will it pass on to me?
Mommy: No, it won't.
Little girl: Will she looks into the mirror and gets scare by how she looks? Or feel sad when she looks into the mirror?
Mommy: No. Not really.......she is too little to understand what's going on with her body.  
Little girl: Can she eat? Can she breathe?
Mommy: Yes.  She can eat and breathe normally.  And see? She could walk, run around, and play in the park!

Mommy told me that she was glad that the little girl is willing to ask questions, as that's the first step to get to know me and my condition.  A big step that hopefully will raise awareness of this rare medical condition!

Then when I was playing, another girl shout out and said I look scary to her.  Mommy immediately told her that I'm not scary at all and I'm no difference than her---a normal little girl!

Well...honestly, I don't quite understand what was going on today with people talking with mommy and surrounding me constantly.  May be like mommy said, I'm just too little to understand.  I just did my own things and ran down the slides numerous times! ^.^ Oh yeah....and I remember there were two boys who came to me and said I'm a cutie!!!!! (That I totally get...hahahaha)

Before we head home, mommy told me that I did a good job today and she loves me very much.
I guess is pretty easy to do a good job...all I did were run and play!

The slide

I'm able to climb up and go down on a slide by myself! Yeah!!!(well...for a short slide as you could tell from the photo ^.^)

Still a big achievement, don't you think?

Tubes are out

Mommy and I go back to Seattle Children's today to take off the two drainage tubes that are intact to me after the procedure.  I could now run and play without tubes hanging on my body anymore.  Freedom~!! ^.^

Sclerotherapy treatment for the first time

Sclerotherapy is a procedure used to treat blood vessels or blood vessel malformations (vascular malformations) and also those of the lymphatic system. A medicine is injected into the vessels, which makes them shrink. It is used for children and young adults with vascular or lymphatic malformations. 

Since the mass on my neck is getting bigger, the doctors in Seattle Children's suggested that I should try out Sclerotherapy.  I was given some sleepy drugs while the procedure is being done.  I feel a little bit painful and sore on my neck after the procedure, but the pain level is controllable with the help of some pain relief medicines.     I stayed in the hospital for two days and did two treatments in total.  Hopefully this will help decrease the size of my mass, so that I can move my head more easily.

Mommy is so glad that I would start eating again after the procedure, as she is afraid that I would lose my appetite like last time after surgery.

Heading home from the hospital

Reassemble my crib

I have moved to another room during my relatives came visit the last two weeks.  Now that they are gone, I have to move back to my original room and also reassemble my crib (well...I'm actually more like the assistant, daddy was the one who actually put everything together....hehe....)

Out of town guests

Oh my......a few of my uncles and aunties from Hong Kong had came to visit me in Seattle.  They stayed for two weeks and we had such a wonderful time together.  We had visited so many places and did a lot of cool activities.  See it for yourself:

Seattle Center

Shopping in Portland, OR

Tillicum Village

Air Force One @ Museum of Flight

Treasure hunting at Leavenworth, WA

 I'm so prepared to go out in a sunny day!So much fun!!!