Sunday, September 30, 2012

Attend a wedding in Vancouver BC

I'm so glad that I can go to this road trip with my favorite buddy--Oscar!

The ceremony was lovely and I was learning how to pray!

The hotel room is really cozy too, everything is just so BIG!

The food in the reception is awesome.  Shh....don't let Oscar know I'm eating as he might take my food away haha ^.^

Friday, September 28, 2012

New oral medicine trial

Daddy, mommy and I went to Seattle Children's hospital today for a medicine trial.  Mommy said that I was such a good girl, as I was really calm and well behaved when the nurse took my weight, length, blood pressure and also trying out the medicine for the first time.

The drug is called "Propranolol".  The doctor said I have to take it for six months, three times a day.  Luckily, it tastes pretty good so mommy doesn't have to force me to take it each time.  You know, I can be quite stubborn sometime.

Anyway, the doctor will evaluate me from time to time and hopefully there won't be much side effect with taking this medicine!

Sunday, September 23, 2012

Church Retreat

This is my first year going to the church retreat with my family.  It was quite fun and I got to stay up late to play with a lot of uncles and aunties ^.^

Mommy prepared me a suitcase for the retreat

Outside our cabins

Trying to participate in one of the worship sessions

Try out miniature golf for the first time

Saturday, September 15, 2012

The Puyallup Fair


I have so much fun in the Puyallup Fair. The place is huge and I got to see a lot of animals, chickens, horses, bunnies, cows, pigs..........can't name all of them.  Daddy also got me a Dora balloon! It is so cute and I play with it every day now ^.^  Hopefully, mommy and daddy will take me to the Fair every year from now on and one day I'm going to go on all those fun rides!!!!!!!!


Tuesday, August 28, 2012

Gave out my 1st info card!

Today is a busy day for me as I have quite a few doctor appointments to attend in Seattle Children's Hospital.  Daddy and grandma are so nice, they took a day off so that they could be by my side for the appointments.  It is pretty exhausting to see doctors, nutritionist, and specialists from 11:00am to 2:30p.m. but we made it!

Mommy hand out our 1st info card to the social worker in the hospital, so that she would know my updates through my blog.

We went to Boom Noodle for lunch afterward.  I always enjoy eating their ramen! So.....yummy!  Then, we went to the playground next door after lunch and I had so much fun playing with the slides.  There was a little girl who kept asking mommy questions about me, and mommy didn't mind answering them.  At last, mommy hand an info card to the little girl's daddy.

I think it is totally awesome that mommy got to hand out the info card to parents, so that they could help educate their children about this medical condition.  Mommy told me that she really appreciate people being up front and ask her questions about my condition.  Because it could provide mommy a chance to explain to people and get them understand a little bit more about me.  So hopefully they would realize that there's nothing wrong with me and I'm just a normal kid.  Mommy also told me that she rather have curious kids than people just stare at us. (which is quite hurtful sometime)

Saturday, August 25, 2012

Info cards are finally here!



Really appreciate my brothers and sisters from church who made these wonderful info card for Jasmine!!!!
God bless you all XOXO

Wednesday, August 22, 2012

Good job, Jasmine!

Mommy took me to the park today and it was so much fun as I got to play with the slides, swing, and also chase the ducks!
There were a lot of kids when we got to the park, and there were quite a few kids kept surrounding me and asking mommy tons of questions.  I overheard their conversion:


Little girl: What's wrong with her (referring to me--Jasmine)
Mommy: (Try to not use any medical terms and explain my condition to her patiently)  She has a medical condition.  There's water got collected in her neck and arm.
Little girl: That's sad......does it hurt?
Mommy: Not at this moment.
Little girl: Will it pass on to me?
Mommy: No, it won't.
Little girl: Will she looks into the mirror and gets scare by how she looks? Or feel sad when she looks into the mirror?
Mommy: No. Not really.......she is too little to understand what's going on with her body.  
Little girl: Can she eat? Can she breathe?
Mommy: Yes.  She can eat and breathe normally.  And see? She could walk, run around, and play in the park!

Mommy told me that she was glad that the little girl is willing to ask questions, as that's the first step to get to know me and my condition.  A big step that hopefully will raise awareness of this rare medical condition!

Then when I was playing, another girl shout out and said I look scary to her.  Mommy immediately told her that I'm not scary at all and I'm no difference than her---a normal little girl!

Well...honestly, I don't quite understand what was going on today with people talking with mommy and surrounding me constantly.  May be like mommy said, I'm just too little to understand.  I just did my own things and ran down the slides numerous times! ^.^ Oh yeah....and I remember there were two boys who came to me and said I'm a cutie!!!!! (That I totally get...hahahaha)

Before we head home, mommy told me that I did a good job today and she loves me very much.
I guess is pretty easy to do a good job...all I did were run and play!