We are home!

Jasmine was discharged from the hospital on Monday 9/26. We were all so happy that we finally got to go home. 


























I bet Jasmine feels very happy about that too, as I finally see her smile again after we got home and laid her down on our bed. She even hold the zippy cup and drink from it by herself. 
Hopefully, she will feel better every day and eventually go back to her old eating habit. Right now, she would only take couple spoonful of baby food and still doesn't want to drink milk from the bottle. As a result，she is still eating through the feeding tube. 
Thank you for everyone's continuous support and prayers.

09/25/11 Jasmine's condition update

My husband and  I really miss bringing Jasmine to church for Sunday service. But we are optimistic that we could do it very soon! Since we can't go to church to worship our Lord, daddy decides to do it in the hospital. We read some bible verses, sing some praise songs, and pray together as a family. It is such a joyful and peaceful time. 
Jasmine is doing pretty well today except she still hasn't gain any weight back. She is so skinny now that I really hope she could feel more comfortable and start to eat more when we go home. 
The only episode that happened today is placing the feeding tube. I was supposed to learn how to do it but I got so emotional even before it has started. At last, I have to step out from the room and have my husband take over . Once again, daddy did an excellent job!

09/24/11 Jasmine's condition update

My weekend plan? Staying in hospital. My next weekend plan? Play and laugh with my little princess at our own home. 

The doctors are discussing again if they have to continue monitoring Jasmine in the hospital. If not, she probably can get discharge on Monday. 

Feeding pump training-checked
Practice on changing bloody dressing-checked
Putting the feeding tune into Jasmine-um.....TBD....probably tomorrow.....

Above are the three things that parents must learn before Jasmine can be discharged. 

Another episode today as Jasmine throws up again after feeding and she has a minor fever but fortunately it is gone after awhile. She is now in a pretty good mood and we really hope that she will keep up the good mood and tolerate all her feedings. So that we could get to go home next week.

09/23/11 Jasmine's condition update

Jasmine has her MRI done today. The result indicates that although the mass on her neck looks bigger, it is not dangerously close to the air way. Therefore, we shouldn't worry too much about her having breathing problem later on. However, her esophagus got pushed a bit due to that mass and the doctors think that it might be the reason why Jasmine is not willing to eat.
Anyway, Jasmine will have to keep the feeding tube with her before she is willing to eat on her own again. And the scariest thing is that I have to learn how to put in the feeding tube!!! 
Besides the MRI, the doctor also performed a throat scope on her. I have to step out of the room, as I really don't want to see another equipment being insert into my little's girl body forcefully. Of course Jasmine doesn't like that either, but the bright side is that the test result come out positive.

09/22/11 Jasmine's condition update

Another tough day..........

Jasmine continues with her tube feeding, but the poor girl throws up at one of the feeding sessions.  Then she feels so uncomfortable that she just cries non stop, which scares the heck out of me.  At last the nurse calms her down by injecting a stronger pain relief medicine. 

After all the drama, I almost have an emotion break down.  Fortunately, I have a lot of supportive friends who help me through it, and I'm still alive at this point.  During my short break from the hospital, my husband told me that Jasmine's temperature is a bit high.  That totally freaks me out again but her temperature is back to normal after 15 mins.  Due to cautious reasons, the doctor decides to run a blood test on Jasmine.  Poor Jasmine has to suffer four pokes before the nurse could get sufficient blood amount for testing. 

Since the mass on Jasmine's neck got larger after the surgery, the doctor has scheduled another MRI tomorrow.  I know everyone has been praying hard for Jasmine and our family......don't mind me saying this again and again....please continue to keep our family in prayer.  Thank you.

09/21/11 Jasmine's condition update

Jasmine has a swallow study today, and the result indicates that she is swallowing fine. However, we still couldn't figure out why she won't eat from a bottle and eat a lot less than usual. 
Jasmine's doctor requests us to feed her 5 times a day. We would try to feed her first (usually she would eat about 50ml of food with spoon...absolutely no bottle or zippy cup) then the rest will be fed by tube. So far she is doing ok....would throw up occasionally but she did gained 0.07 kg today! 
The doctor gave her antibiotics to control her minor infection on the wound. She has already use that for two days and she needs to take it for five more days in order to fully utilize the drugs. 

09/20/11 Jasmine's condition update

It has been a week since Jasmine's surgery and she is still in the hospital. Jasmine is still not quite willing to eat and the doctors have decided to put in a feeding tube today. It was not a pretty scene and I was asking myself "what have I done to my little girl?" " She was fine all along....did I rush on the surgery?" "what have I done to my little girl?"
Jasmine vomits out a bit of her food for her second tube feeding. I really hope that she would get use to the system as soon as possible and keep all the food in her tummy.