My name is Jasmine and I'm diagnose with Lymphatic Malformation. I'm writing this blog to raise awareness about this medical condition and have you understand me a little bit more.
Sunday, December 25, 2011
Sunday, December 18, 2011
Pulling myself up
I can pull myself up and stand for a little while with minimal support. Mommy and daddy gave me a lot of kisses after seeing me do that for the first time.
Friday, December 16, 2011
Feeding tube is off
As some of you might have noticed, I'm not wearing the feeding tube anymore. It is because the tube is so annoying that I pulled it out twice in November, and then once in the beginning of Dec. Then daddy decided not to put it back into my little noise and hoped that I would eat by mouth again.
It was a nerve wrecking experience for mommy, as she is strict when it comes to following rules.....the doctors told her that I need to eat 30oz of formula daily then she follows.....so when I did not meet the requirement the first few days after the tube was out, mommy was freaked out.....then I lost 0.8lb after just three days of pulling out the tube....mommy freaked out again (I mean FREAKED OUT!)
Finally, my parents consulted with the doctors and specialists, and they agreed to have us continue this trial under one condition: A weekly weight check.
I'm slowly picking up with the oral eating routine since then; however, I still think the formula is yucky.
Friday, December 2, 2011
I'm a gamer
Mommy was mad when she saw me holding the Xbox controller and told me that video games are not for babies. Well, I'm not so sure about what mommy said and I think there's gamer blood run inside my body. May be it is inherited from daddy.......hehehehe.....
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