My name is Jasmine and I'm diagnose with Lymphatic Malformation. I'm writing this blog to raise awareness about this medical condition and have you understand me a little bit more.
Wednesday, November 30, 2011
My dog
This is my dog. He is a Beagle and his name is Miu (a Chinese name that my parents gave him, not sure what it means though......) I love to play with him, but he doesn't feel the same way. He usually goes to another room when he hears me cry or scream.....so weird, but I still love him very much!
Tuesday, November 29, 2011
Exploring music
I love music and should move my body with the beat. I want to be a musician (well, at least for now........)
Saturday, November 19, 2011
Sitting up by myself
Mommy and daddy were screaming when they saw me sitting up by myself. They tell me that they are so proud of me. ^.^
Sunday, November 13, 2011
Mommy's reflection
Mommy and daddy are so happy that I got to go home. Let's the celebration begins!
After staying in the hospital for 31 days, Jasmine finally got discharged on 11/8/11. During this tough time, I have learnt a few very valuable lessons.
--God is in control: I knew this since day 1 when I decided to follow Jesus Christ. However, this experience helps solidify this idea and God reminds me once again who is the boss. God has a blueprint for everyone of us, all we could do is be humble and trust Him that HE will provide the best for us.
--God will make a way: when our family was desperately pleading God to let us go home, HE did not make it happen right away. We were disappointed and frustrated because we did not understand God's plan. God answered our prayer after we stayed in the hospital for 31 days. Miraculously, 31 days is exactly what we need; in order to be eligible for Medicad (health insurance benefit) from the Federal government! Due to my husband's unstable job situation, it is extremely important for Jasmine to have a back up insurance coverage. Praise the Lord, and HE has indeed provided the best for us.
--Be faithful: there were times that I lost faith in God and just wanted to run away from HIM. Thankfully, HE did not let me slip through. I lost my strength and faith during the third week stay in the hospital. I felt so depressed and almost wanted to give up. But God reminds me again and again that I should not give up on HIM, as HE has never given up on me. So I lifted my head up and decided to stay faithful no matter what, then God just took away my depress feeling and allowed me to press on!
--Stop complaining: one day I was chatting with another family in the hospital and I complained that I have already stayed in the hospital for "FOUR" weeks! Then the little girl from the family said, "Four weeks? That's nothing. We have been here for SEVEN months already!". I felt so embarrass at that time, as I thought my life was so miserable that I have to complain about every little things.
--Don't take things for granted: Your health, family, friends...... We should cherish them while we have them.
--God will make a way: when our family was desperately pleading God to let us go home, HE did not make it happen right away. We were disappointed and frustrated because we did not understand God's plan. God answered our prayer after we stayed in the hospital for 31 days. Miraculously, 31 days is exactly what we need; in order to be eligible for Medicad (health insurance benefit) from the Federal government! Due to my husband's unstable job situation, it is extremely important for Jasmine to have a back up insurance coverage. Praise the Lord, and HE has indeed provided the best for us.
--Be faithful: there were times that I lost faith in God and just wanted to run away from HIM. Thankfully, HE did not let me slip through. I lost my strength and faith during the third week stay in the hospital. I felt so depressed and almost wanted to give up. But God reminds me again and again that I should not give up on HIM, as HE has never given up on me. So I lifted my head up and decided to stay faithful no matter what, then God just took away my depress feeling and allowed me to press on!
--Stop complaining: one day I was chatting with another family in the hospital and I complained that I have already stayed in the hospital for "FOUR" weeks! Then the little girl from the family said, "Four weeks? That's nothing. We have been here for SEVEN months already!". I felt so embarrass at that time, as I thought my life was so miserable that I have to complain about every little things.
--Don't take things for granted: Your health, family, friends...... We should cherish them while we have them.
--Express appreciation openly: all our love ones has shown us care and support in all sort of different channels: phone calls, Facebook messages, homemade/delivered meal, soup, dessert, drawings, greeting cards, prayers. Our strength come from all of you, and I sincerely thank you and I don't mind to say it over and over again. I have never experienced so much love, and Jasmine is so lucky to have so many people who love her so much!
Our journey doesn't stop here, so we will continue to seek guidance from God and remain faithful.
Tuesday, November 1, 2011
Not ready to go home yet
So at last the doctor forbid the idea of sclerotherapy, because Jasmine's drainage output has decreased. Most importantly, Jasmine was actually so active that she had successfully detached the drainage tube from her body.
Without the tube, some of the fluid got collected and created a little bump on her chest. Surgeons and doctors want to keep an eye on it and make sure that it won't grow in size or cause infection. Then the doctors also mention that her immune protein is low and she would need to inject IVIG(immune protein) weekly. How long will the treatment last? We don't really know, as that have to depend on Jasmine's test result. Last but not least, specialist from infection team will try to switch Jasmine's antibiotics from IV to oral. We are not sure when will they begin that switch, but they would need to spend couple days to monitor Jasmine's condition after the switch
With everything mentioned above, it comes to a conclusion that we have to remain in the hospital for a longer period of time.
Besides Jasmine's condition, there are more hardship that had happened recently in our family. Super tough time, but we as a family are keeping our spirit up. We learnt that although we might not understand God's plan, but we can 100% sure that He would only prepare the best things for us. Challenges are not blocking stones to us, instead they should be stepping stones to achieve higher things. Lee's family will not let the devil beat us so easily!!!!!
We are thankful thatJasmine is doing better each day. She is more like her old self now - happy, playful. We are also super thankful that we have a lot of support from family, friends, brothers and sisters in Christ. I can never say enough "thank you" to all those lovely people.
Without the tube, some of the fluid got collected and created a little bump on her chest. Surgeons and doctors want to keep an eye on it and make sure that it won't grow in size or cause infection. Then the doctors also mention that her immune protein is low and she would need to inject IVIG(immune protein) weekly. How long will the treatment last? We don't really know, as that have to depend on Jasmine's test result. Last but not least, specialist from infection team will try to switch Jasmine's antibiotics from IV to oral. We are not sure when will they begin that switch, but they would need to spend couple days to monitor Jasmine's condition after the switch
With everything mentioned above, it comes to a conclusion that we have to remain in the hospital for a longer period of time.
Besides Jasmine's condition, there are more hardship that had happened recently in our family. Super tough time, but we as a family are keeping our spirit up. We learnt that although we might not understand God's plan, but we can 100% sure that He would only prepare the best things for us. Challenges are not blocking stones to us, instead they should be stepping stones to achieve higher things. Lee's family will not let the devil beat us so easily!!!!!
We are thankful thatJasmine is doing better each day. She is more like her old self now - happy, playful. We are also super thankful that we have a lot of support from family, friends, brothers and sisters in Christ. I can never say enough "thank you" to all those lovely people.
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